The Australian Commission on Safety and Quality in Health Care has just released National Consensus Statement: Essential Elements for Safe and High-quality Paediatric End-of-life Care.
They are seeking consultation. To ensure that this draft document accurately reflects the expected standard of care and agreed practices for paediatric end-of-life care, comments and feedback are now being sought through this consultation process.
The death of a child is a rarity in Australia. A child’s death can have a profound and lasting impact on their parents, siblings, carers, friends, health professionals, and communities. The health care that children with life-shortening conditions receive in the last years, months and weeks of their lives can help families to manage the distress and grief associated with death and dying, and maximize the child’s quality of life.
The purpose of this national consensus statement is to describe the elements that are essential for delivering safe and high-quality end-of-life care to children in Australia. The Consensus Statement sets out suggested practice for the provision of pediatric end-of-life care in settings where acute care is provided. Clinicians, health service executives and managers, policy-makers, educators and training providers can use the principles and elements of the Consensus Statement as a guide to improving the safety and quality of pediatric end-of-life care.